The Panel discussion organized by HALL at CPDP 2023 on the EHDS and the secondary use of health data will be held on 24 May 2023. The topic of the panel is THE EHDS AND SECONDARY USE OF DATA: IS IT POSSIBLE TO BALANCE INDIVIDUAL INTERESTS WITH THE ULTIMATE NEED FOR DATA SHARINGTO FACILITATE RESEARCH?
The proposed European Health Data Space represents a radical idea that is likely to fundamentally change the way health data is used and shared across Europe. Its proposals to facilitate the increase secondary use of health data for scientific research will bring about an increased level of data sharing and seemingly reduce the importance of obtaining consent in many forms of research. Whilst it is hoped that the EHDS will go some way to redressing a perceived research gap that has opened up between Europe and the US, significant concerns exist surrounding the protecting of individual interests, especially in terms of privacy and data protection. This panel will explore some of these issues, looking at both the promises and the challenges the EHDS brings with it.
- The secondary use of health data: is it the revolution in legal regimes for data?
- How may the secondary use of health data facilitate the scientific research?
- Is the secondary use of health data compatible with data protection, privacy, and other interests of individuals?
- The EHDS and secondary use of health data: what is the direction to move forward?
Moderator: Nerea PERIS BRINES, European Data Protection Board, (EU)
Speakers: Anna Lytra, European Data Protection Board (EU);
Pauline Granger, Sanofi (FR);
Sara Roda, Committee of European Doctors (EU);
Anastasiya Kiseleva, VUB (HALL, LSTS), CYU (ETIS), (BE) (FR)